A note about resources suggested within this page to help care partners serve loved ones facing dementia: Many of these resources are provided free on this web site. We also reference other helpful resources that are available for purchase only from outside vendors. For clarification purposes, those resources will be preceded in this Action Plan by a dollar sign ($). Our Ministry receives no benefits from such sales.
Awakened this morning to the living reality of the paradigm shift in life with my Bill. Everything has changed since I heard the doctor say, "You failed the test, you have dementia", as we sat silently absorbing those words in that pristine little room...
The end goal of this journey is to be able to look back and say with confidence throughout the time we wrestled with this illness Doug felt reasonably happy and well cared for and that he was able to experience as many of life’s “Wow” moments as possible.
There is no room for self-pity, frustration or anger as none of these things contribute anything positive to the experience. What is important for me is to take time for self-care and prayer one day at a time.
This is not my battle to fight so I will never have a remote chance of winning.
This is something I cannot fix no matter how much I yearn to do so.
I cannot make anyone understand the feelings I have or the struggles watching this unfold, but instead need to lean into God every moment for strength.
So that I remember what I cannot control here is a reminder list of symptoms:
I just returned from a week at the beach with my loved one who lives with dementia. I learned a few things on the journey and wanted to take this opportunity to share some tips and tricks I learned that may save you some headaches along the way.
While we may decide to take a vacation with our loved one, the one thing we need to be mindful of is that dementia comes right along with us. It doesn’t even need its own suitcase!!! It is ever-present in our lives regardless of our location.
Here are some suggestions to make your experience more enjoyable: